Olivia's Story
4:17
Olivia's Story
2.8K viewsNov 19, 2022
YouTubeValleyChildrens
Josie's Joyful Life (One Of the World's Rarest Syndromes)
12:30
Josie's Joyful Life (One Of the World's Rarest Syndromes)
1.1M viewsNov 17, 2022
YouTubeSpecial Books by Special Kids
Josephine's Journey: Overcoming Antley Bixler Syndrome
0:07
Josephine's Journey: Overcoming Antley Bixler Syndrome
Jul 15, 2022
TikTokannaowenn
Understanding Antley Bixler Syndrome: Josephine's Story
0:57
Understanding Antley Bixler Syndrome: Josephine's Story
317.7K viewsFeb 27, 2021
TikTokannaowenn
🫶🫶 #medicalmom #specialneedsmom #antleybixlersyndrome
0:10
🫶🫶 #medicalmom #specialneedsmom #antleybixlersyndrome
691 views2 months ago
TikTokannaowenn
Anna Grace Owen | Happy world rare disease day! Josie has Antley Bixler Syndrome which is 1 in 250 million. She also fails into the 1 in 4 of her Syndrome... | Instagram
0:25
Anna Grace Owen | Happy world rare disease day! Josie has Antley Bixler Syndrome which is 1 in 250 million. She also fails into the 1 in 4 of her Syndrome... | Instagram
Mar 3, 2023
Instagramannaowen
ANTLEY BIXLER SYNDROME : What is Antley Bixler syndrome ? - Antley bixler syndrome symptoms
1:32
ANTLEY BIXLER SYNDROME : What is Antley Bixler syndrome ? - Antley bixler syndrome symptoms
2.3K viewsMay 21, 2020
YouTubeDaily Dose of Medicine
0:40
Anna Grace Owen on Instagram: "It’s craniosynostosis awareness month!! Josephine was born with syndromatic bicoronal craniosynostosis caused by Antley Bixler Syndrome She’s had three brain surgeries to reconstruct her skull to make room for her brain and her eyes. She has probably one more before we will be done with head surgeries. We have had AMAZING providers at our children’s hospital and without them, Josie wouldn’t be here with us. Hug a cranio kid today!"
30.8K views7 months ago
Instagramannaowen
7:14
Antley-Bixler syndrome
4K viewsNov 14, 2018
YouTubeLearn Medical Genetics
0:52
Josephine's Journey with Antley Bixler Syndrome
56.1K views3 months ago
TikTokannaowenn
4:20
Meet Olivia – our super girl who is as brave as can be! Diagnosed with Antley-Bixler syndrome, she has undergone several surgeries since birth to correct structural changes to her bones and face. Learn about how virtual surgery planning (VSP) was used by the experts at Valley Children’s for her latest procedure to reduce surgery time and anesthesia while optimizing her outcome. | Valley Children's
14.4K viewsOct 15, 2020
FacebookValley Children's
Anna Grace Owen on Instagram: "Hi! This is Josephine Grace. She was born May 29, 2020. Some fast facts about Josie: She has a super rare condition called Antley Bixler Syndrome. It only affects about 1 in 250 million people. So she's pretty special. She also has bicoronal craniosynostosis and has had two brain surgeries to help correct it. At 3 weeks old, Josie got a tracheostomy tube so she could breath. She has microfacial hypoplasia and couldn't breath through her nasal passages, so she neede
64.1K viewsOct 24, 2022
Instagramannaowen
0:08
Understanding Antley-Bixler Syndrome: A Mother's Perspective
7K views2 months ago
TikTokannaowenn
0:27
Anna Grace Owen | February 28th is rare disease day! Josephine has Antley Bixler Syndrome, which affects 1 in every 1,000,000. There are barely over 100... | Instagram
42.2K viewsFeb 28, 2022
Instagramannaowen
0:14
Anna Grace Owen on Instagram: "Hi! I'm Josephine Grace. I have Antley Bixler Syndrome and Craniosynostosis. I have 2 sisters and a brother, I love to smile and be silly, and today is my BIRTHDAY!! 5-29-2022"
506.3K viewsMay 29, 2022
Instagramannaowen
hafiyaffanNEW on TikTok
Mar 4, 2025
TikTok
13:54
The World's Sweetest Girl
13M viewsNov 10, 2017
YouTubeSpecial Books by Special Kids
26:51
A Day in the Life of Peyton
1.9M viewsMay 17, 2018
YouTubeSpecial Books by Special Kids
1:38
Antler deformity - injury, genetics, or brain abscess?
827 views3 months ago
YouTubeKip Adams
Minha História com a Síndrome de Antley-Bixler
170.1K viewsSep 2, 2023
TikTokluaninhaoficiall
9:15
Encouraged by her daughter with the incurable disease "Antley-Bixler Syndrome," a mother plans a ...
16.1K viewsOct 4, 2023
YouTube長野県のニュース NBS長野放送
2:36
Síndrome de Antley-Bixler: La lucha de madre e hijo
318.1K viewsApr 4, 2025
TikTokmarce.enzo
13:17
Special Books by Special Kids on Instagram: "Peyton is Deaf and also one of only several people to ever be diagnosed with Bixler syndrome. She is happy to be herself but does have one wish. Peyton hopes to one day find a flower that is shaped like a heart that she can give to her best friend."
615.2K viewsNov 12, 2020
Instagramspecialbooksbyspecialkids
28:23
14 Children With The Rarest Conditions In Medical History
11.4K views1 month ago
YouTubeHuman Oddities
3:34
Peyton is one of less than fifty people to ever be diagnosed with Bixler syndrome and is also Deaf. She met her best friend, who is hearing, while picking strawberries in a field. That day the girls took on a group of boys in a strawberry fight. They have been best friends ever since. | Special Books by Special Kids
4.5M viewsMay 18, 2018
FacebookSpecial Books by Special Kids
13:42
The rare disorder that could hold the secret of what makes us who we are | 60 Minutes Australia
877.6K viewsApr 12, 2022
YouTube60 Minutes Australia
3:13
Peyton is diagnosed with Bixler syndrome (of which there are under fifty known cases ever) and is also Deaf. She is proud of her "fairy ears" but does have one wish. Peyton hopes to one day find a flower that is shaped like a heart so she can give to her best friend. | Special Books by Special Kids
2.4M viewsNov 10, 2017
FacebookSpecial Books by Special Kids
11:50
Girl Has Condition Only About 100 People in The World Have
460.1K viewsDec 21, 2024
YouTubeInside Edition
5:03
My Child has 22q
109.4K viewsAug 12, 2016
YouTubeThe International 22q11.2 Foundation
6:14
Love in the air at Debutante Ball for Disability | ABC News
483.1K viewsJun 29, 2017
YouTubeABC News (Australia)
See more