News

Cystic Fibrosis Foundation7d
CF Foundation Implores the Senate to Vote Against Devastating Cuts to Necessary Health Care
Proposed cuts to Medicaid and the ACA marketplace will rob people with cystic fibrosis of critical health coverage needed to ...
Cystic Fibrosis Foundation7d
My Journey Through Late Diagnosis
After seeing the impact of my sister’s cystic fibrosis throughout my childhood, my late CF diagnosis, while difficult, has brought healing, strength, and a renewed sense of purpose to my life.
Cystic Fibrosis Foundation12d
Our Introduction to CF as New Parents
Navigating my newborn’s CF diagnosis during the height of the COVID-19 lockdown was one of our hardest moments — yet it was only the beginning of a journey filled with unexpected joy and hope.
Cystic Fibrosis Foundation14d
Living With CF While Homeless
Living with cystic fibrosis while facing homelessness has tested me in every way. However, through it all, I’ve found strength, purpose, and the unshakable belief that I must keep going — for myself ...
Cystic Fibrosis Foundation1mon
I Thought I Had CF Under Control. Then I Was Diagnosed with CF-Related Diabetes
When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes. I thought I ...
Cystic Fibrosis Foundation1mon
Patient, Research Organizations Call on Congress to Protect Nation’s Biomedical Research Institutions and Infrastructure
Dear Speaker Johnson, Chair Aderholt, Leader Jeffries and Ranking Member DeLauro, We, the undersigned organizations, write to express our deep concern for our nation’s biomedical research institutions ...
Cystic Fibrosis Foundation1mon
Why I Stride | Cystic Fibrosis Foundation
Disclaimer. This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but ...
Cystic Fibrosis Foundation1mon
My Ironman Journey With Cystic Fibrosis
Training for an Ironman race is no easy feat, especially when living with cystic fibrosis. But I'm more determined than ever to push my limits, make my younger self proud, and prove to others that ...
Cystic Fibrosis Foundation1mon
Survey Results Detail CF Community’s Ongoing Challenges and Commitment to a Cure for All With CF
Nearly 2,000 individuals in the cystic fibrosis community provided insights on the burden of the disease, research priorities ...
Cystic Fibrosis Foundation3mon
22 National Patient Organizations Voice Concerns to Department of Health and Human Services Removing Key Opportunity for Public Voice
WASHINGTON, D.C. (March 6, 2025) — On Monday, the Department of Health and Human Services (HHS) published a document in the Federal Register announcing rescission to a long-standing policy that ...
Cystic Fibrosis Foundation4mon
Learning to Love Myself After Years of Bullying
Disclaimer. This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but ...