News

Proposed cuts to Medicaid and the ACA marketplace will rob people with cystic fibrosis of critical health coverage needed to ...
After seeing the impact of my sister’s cystic fibrosis throughout my childhood, my late CF diagnosis, while difficult, has brought healing, strength, and a renewed sense of purpose to my life.
Navigating my newborn’s CF diagnosis during the height of the COVID-19 lockdown was one of our hardest moments — yet it was only the beginning of a journey filled with unexpected joy and hope.
Adulting is something I don’t think I was necessarily prepared for. That’s not to say anyone is, really, but with CF, it was something I didn’t ever let myself put too much thought into. While having ...
Cystic fibrosis is caused by mutations in the gene responsible for producing the cystic fibrosis transmembrane conductance regulator (CFTR) protein. For this reason, scientists are exploring ways to ...
This month is a celebration of you — the individuals, families, and supporters who make up the CF community. You can join us by sharing your accomplishments, milestones, and hopes for the future on ...
Training for an Ironman race is no easy feat, especially when living with cystic fibrosis. But I'm more determined than ever to push my limits, make my younger self proud, and prove to others that ...
Nearly 2,000 individuals in the cystic fibrosis community provided insights on the burden of the disease, research priorities ...
Living with cystic fibrosis while facing homelessness has tested me in every way. However, through it all, I’ve found strength, purpose, and the unshakable belief that I must keep going — for myself ...
The toll that dying takes on your mental health is something I would not wish on anyone, and I cannot begin to explain how difficult it was to live with that state of mind, especially at only 19 years ...
Disclaimer. This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but ...
Food insecurity is a long-standing problem in America. According to the U.S. Department of Agriculture (USDA), food-insecure households are those with “limited or uncertain access to adequate food.” ...