News

Columnist G Shellye Horowitz turns to fun hobbies while coping with chronic illness. Recent art purchases offer interesting ...
Health Canada approved Altuviiio to treat hemophilia A in children, adolescents, and adults with the condition.
The FDA has approved fitusiran, now Qfitlia, as a treatment for hemophilia A or B patients, ages 12 and older, with or ...
Researchers said a better understanding of barriers to bone health in hemophilia and VWD is needed, and guidelines should be ...
Alhemo prophylaxis is linked to better quality of life and a lower treatment burden for hemophilia patients without ...
Having more choices about the treatment of hemophilia is empowering, but it also comes with challenges, columnist Jennifer Lynne writes.
My nurse friend remembered me as a mom whose focus was her son, not herself, and who carried a heavy weight of body and soul. Seeing her reconnected me with a significant piece of my past. Her ...
The cost of the one-time hemophilia B gene therapy Hemgenix (etranacogene dezaparvovec) will now be covered for eligible patients in Germany through the country’s public healthcare system. This comes ...
Columnist Joe MacDonald explains how holding on to rituals has gotten his family through some challenging times with chronic illness.
Columnist G Shellye Horowitz talks with Heidi Bentz about her bleeding issues and decades-long journey to a von Willebrand disease diagnosis.
Life when you’re married to someone with severe hemophilia B often feels unpredictable. One moment, everything seems fine, and the next, a spontaneous bleed or unexpected health concern throws ...